14 Comments

Thanks for writing this, Abby! As a mother with a troubled teen, I had a similar feeling of uncertainty and marvel at all the ways I clung to answers, avoided truths, and blamed myself for my child’s suffering. My process toward healing was long and arduous but I had to go through it to get to the other side. Thank you, and Karen, for sharing your stories so that others will not feel so alone.

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Thanks, Ann. Yeah, I didn't even get into the guilt--that's a whole other thing. Why did it take so long to get answers, why didn't I push harder, why why why. I'm grateful our kids are doing well and that we moms have been able to find some healing through writing, therapy, distance of time.

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Yes- so much to be grateful for!

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Someday we'll find an opportunity for the three of us to share our stories together!

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Absolutely!

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“It’s when the lights turn on that things slowly start to get better.”

“It’s not about aiming for perfection, but acting with intention.”

I’ll be mulling these gems all day. Thank you!

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Thank you!

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“It’s not about aiming for perfection, but acting with intention.” Brava!

Your and Karen’s stories are heartbreaking, and I can’t wait to read both—you’re the real shero’s.

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Thank you Maureen!

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I love where your compare and contrast process led you, Abbey. Although our instincts were different--something is wrong! something is not wrong!--rationalization was indeed our common denominator. I so appreciate being able to have this deep conversation with you!

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Ditto.

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Abby, Thank you for sharing your story. I have a similar story to you and Karen. I have been writing it in my head for years. I have recently unearthed the pile of paperwork from various doctors and specialists, as well as the lists of ineffective medications (and their side effects) my son was prescribed before my husband and I sought out our own answers. I have the facts, but what I am finally ready to explore are the feelings about my decisions and the outcomes. Relieved to say that my son is now 25 years and healthy!

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Hi Marnie. I’m glad he is well. It’s amazing how much comes flooding back when you sift through the artifacts, isn’t it? I hope you write your story.

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Apr 11, 2023
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It’s so tough being in that situation. That sounds like a scary time for you. I have to say I wasn’t crazy about some of the attendings but always loved our nurses and respiratory therapists. We had many late night chats and they were such a comfort.

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